Saturday, July 15, 2006
and they wonder why...
Since last night, every time I stand up... I get shooting nerve pains from my feet up into my torso. It feels like I'm about to be paralyzed for the minute or so that it lasts.... and then it subsides when I lay down or sit in a chair. I am down to 15mg of Prednisone for the next couple of days before I go back to my regular dose of 10mg. Something isnt working right, and it feels like the disease has not stopped the progression of nerve damage, based on my continued symptoms. If it doesnt subside by tomorrow night, Dr Kiely's office will be getting another phone call on Monday morning. When the attack occurs, it almost renders me powerless over my own body. Its a terrifying feeling. I also learned today that my eldest sister.... in another angry phone call, several weeks ago, to my mother where she hung up on her for the millionth time.... told her that my "conditon" wasnt "all that bad", and that I "was faking it." I wonder how she got that notion since she hasnt even called or been around to see for her own eyes whats been going on. People just amaze me. That is one of the most stupid and hateful comments I've ever heard come out of her mouth in a long time (there's been plenty). I do know this. She had better watch what she says, as words are powerful. The universe has a funny way of making someone learn empathy and compassion for others the hard way... especially when they are completely clueless. I have lost my faith in others. I've lost my spark. I'm just killing time until I can get out of here and go home. Thank God for my Mother.... She is the sole reason why I'm still here. Although I am wondering daily why I still am...
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