Sunday, July 02, 2006
CIDP info
I found a web site today that had rich amounts of information about CIDP, including forums for personal discussion (message boards). The msg boards were more helpful than anything I've read on the internet thus far. I dont know how to approximate success vs failure stories, as it appears that the people who are doing "fine", arent posting to the site. From what I HAVE read, this an unforgiving disease, and many people dont have much quality of Life. http://www.gbsfi.com Each person reacts differently to treatment, and there doesnt seem to be any indicators as to how a person will, or will not, respond. So far, I have not responded to increased steroids and the initial dosing of IVIG. Combined with looking at end-stage renal failure once again in the near future, as I have 25% renal function, left... I dont doubt what my course of action will be when faced. Absolutely nothing. This party is going to end for good soon... just a matter of time.
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