i cant sleep

It's 3am, and I've been crying every time I lay my head on the pillow to go to sleep. Rafael picked me up at noon yesterday, and we went to lunch. He helped me walk everywhere which was great. I do much better if I dont have to focus on walking and balance at the same time. It still is a great effort to get anywhere. We had a good conversation, and a lot was said that was new. Productive... We made it in time for the doctor's appointment. Rafael was SO helpful and loving and caring. He really came through for me at that appointment. I was a bundle of nerves about what the doctor was going to say, and had it not been for him being there... I would have left that office without my needs being met. Dr Kiely said since I didnt respond that well to the 2 IVIG treatments, I'm probably going to always "know" I have CIDP. He feels that the progression has been arrested, and now we have to wait and see how well the nerves are going to heal. He is trying to get me and keep me functional, instead of winding up bedridden. I dont know yet if I will be able to return to work. I have to wait another 2 weeks to see if I continue to improve before he tries the next round of treatment which is high dose IV steroids. If they do that, he is sending me for a PICC line beforehand. - I had the feeling back in February with my leg wound that "this was the beginning of the end."