As the day wore on into the evening, I found myself getting weaker and weaker. I usually am wiped out from IVIG, but never this bad. I was having to lay down on the floor to rest in order to crawl another 5 feet,.....trying to get to the bathroom. Finally, I got so weak that it felt like my life force was draining away. Mom called both doctors. The kidney doctor said to take 10mg of extra steroids (which we did right away). The neuro doc said for her to observe me and then "make the call" to go to the ER tonight or not. I started perking up during the 2nd phone call, and feeling much better. The more time passed, the better I felt. (The steroid) was kicking in. Whew... saved me the cost of a hospital visit. Tomorrow, I am splitting my 10mg pills into quarters, so I can taper even more slowly. Its the only way I know that will work. So, that was our sassy Wednesday night. I hope we have a really boring night on Thursday. Mom and I are long overdue for some peace and quiet and worry exemption.
Wednesday, August 30, 2006
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