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Kidney Transplant Recipient - women's t-shirtbyfolkartblonde
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Insomnia & Raging Headaches

This weekend has been the total pits. I did not sleep a wink Friday night, and I wound up sleeping all day on Saturday to catch up. And.... ever since IVIG stopped on Friday, I've been having insane headaches. I'm so glad that the doctor changed the treatments to every 3 weeks. I'll get a break, at least. I've been doing some reading on the CIDP message boards, and it seems that out-of-control blood pressure is part of this disease. No wonder its been so up and down for the past 6 months. Maybe thats part of why my headaches are so bad, too. Oh well... another bad card in my poker hand of life. Do you think I will ever beat the dealer?

IVIG is done for the week

My wonderful home health nurse, Debbie, came today for the last of 3 IVIG treatments today. I dont have to have it again for another 3 weeks!! Dr. Kiely said that they cannot use Rituxan on me for CIDP. In "people like me," there is a small chance of brain infections and/or for the white matter of the brain to start to deteriorate. I'm willing to take the risk. I've been reading the CIDP message boards from people who have been there and done it (not doctors), and they all seem to have had excellent results from it. I think its worth the risk, but Dr Kiely doesnt seem to think so. For me, its about quality of life in the present and future. If you dont take risks in your life, you never get anywhere. Democrats are resolved to the status quo, and I am nowhere near being a Democrat, wacked out lefty liberal. On another note, my anxiety level is rising everyday the closer it gets to the 30-day status hearing on Tuesday. I know everything is in my favor, and he doesnt have a leg to stand on, but just having to go and see him... its not going to be pretty. I'm glad its at 11am....plenty of time to get there without having to fight traffic. More later....

Rough time at Hyperbaric yesterday

Nancy has been really sick, and so Mom has been taking me to Hyperbaric this week. We were going to zip over to her house to get the wheelchair, but decided not to disturb her. So, this week I've been walking all the way from the front lobby down to the HBO clinic with the walker. Yesterday, about mid-way there... I started feeling faint, and luckily got inside and found a chair before I fell. Dr. Marcus checked me out and she thinks I may be hypoglycemic as a precursor to being hyperglycemic due to chronic steroid therapy for the last 20+ years. She gave me the name of a SJH PCP who happens to know all of my specialists. I DO NOT WANT TO BE DIABETIC!! Good God Almighty.... when it rains, it pours. My poor body has been through enough without adding that crap to the mix. I know I'm going to need some "in denial" time on this one. On a much happier note..... we're having a winry mix of sleet and freezing rain! Yesss!

2007 can only be better!

Country Girl - folk art
Originally uploaded by folkartblonde.

The 2006 holidays were relaxing, as I spent 2 weeks in the hospital right before Christmas for a blood clot in my right arm caused by an infection in my hand. Who knows how that happened! I've started to finally feel human again for the past week. Yay!

Finally, on January 5th, I was served with divorce papers from Rafael by the Fulton County Sheriff. How stupid can he be? I'd bet a million dollars his homewrecker slut girlfriend put him up to it. Little does she know that she badgered him into something thats just going to make it worse for her little, mixed up in the head boyfriend. And, I do mean "BOY." I hope she comes to the hearings, as I cant wait to see the look on her face when she finally learns the truth about Rafael. I've started having chest and stomach pains due to stress because of all of this, but I met with my attorney again this past week, and she totally calmed me down... at least for that day. lol The battle begins...

I had a very nice dinner with Dad & Maureen the other night, and we talked for 3.5 hours. I was so glad I went, as I didnt realize how much I missed them until I saw them. I've got to make myself pull out of this depression. I see Jim tomorrow afternoon, and I'm hoping we can get somewhere with that then.

More later..... gonna try and sleep.